Hey everyone,

Asking for prayers for my 28 YO son. He has a very rare cancer that he is fighting.

This is a very rare sarcoma that the prognosis is:

2 chemo's

6 weeks of radiation, then, surgery.

My mom, dad, and brother have succumbed to cancer.

We need all your support.

I ask for your prayers.

Prayer warriors UNITE!

We WILL overcome.

Thank you so very much for your support, and.....

Thanks in advance, as always,

Love in Christ,
Miss M

I'll be praying, Miss M.

Thank you, faithful, this means more to us than anyone will ever know.

Blessing to all.

I apologize for not posting much lately, this has been a bit overwhelming.

Thank you all,

Love in Christ,
Miss M

thank you so very much Pep!

(Okay, pity party SEMI over)

I'm a pile, pray for the Lord to give us strength!

Thanks SO much!

Calling out to ALL prayer WARRIOR'S!!!! and MORE !!!

Love in Christ,
Miss M

Miss M, I do not know you but will add you to my prayer list.

There is a great prayer circle at beliefnet.com. There are great prayer warriors there also. God bless

Thank you Hope,

I do know you, lol, as I have kept up on your thread, you are getting some awesome advice.

Thank you for your suggestions and your WARRIOR heart.

Love in Christ,
Miss M

bumpity bump, bump, BUMP!

(And that would be shamelessly!!!!)

Where are our PRAYER WARRIOR'S???

Okay, I know it is late .We need everyone!

Thank you SOOO much.

Love in Christ,
Miss M

Miss M, I'm so sorry to hear this. Prayers going up from California.

So sorry about your son, MissM.

Praying, too.

My prayers are going up for your son, you, and your family. I'm so sorry you have to deal with this.

Prayers going up from Texas.

Miss M, I'm so very sorry.

Prayers for your son and your family from FL.

Prayers for you, your family, and your son from Florida.

Thanks everyone.

He is at Fred Hutchinson Cancer Center in Seattle, will be coming home today and will be scheduled to start his course of treatment in the very near future, so will have to be in Seattle for awhile.

He has a battery of 6 doctors and they are some of the best in the country.

He secured a job last August with great benefits, so we have a lot of blessings.

He has a very rare form of sarcoma, they have only had 4 cases of this in 10 years.

Thank you for your much needed prayers!

Love in Christ,
Miss M

I will be praying for him.

Two years ago, I did a half marathon with Team in Training and raised over $2000 for the Leukemia and Lymphoma Society. This year, I am doing the same race but am raising money for Gilda's Club - which provides free support for cancer patients and their families and friends.

There is a GILDA'S CLUB in Seattle. The goal of Gilda's Club is to provide social and emotional support to patients and their loved ones. They charge nothing for their services. It is named for Gilda Radner, the comedienne/actress, who died of ovarian cancer.

Sending prayers your way.

Prayers going up from Big Sky Country for your son and family.

- and a few of these, too.

Miss M:

I have lifted you and your son up in prayer. As rare as his cancer is, remember that God is the great physician who has the power to heal EVERYTHING!!

Your sister in Christ,
Sparkle

Lifted you and your son up in prayer!

Prayers coming from the Skagit Valley.

He's in good hands at Fred Hutch.

Sending lots and lots and lots of positive thoughts your way

ST

A Blessing
Mi-sheberakh avoteinu v’imoteinu, Avraham v’Sarah, Yitzhak v’Rivkah, Ya’akov, Rachel v’Leah hu y’varekh et (Miss M's son) v’yavi aleihem refuat hanefesh u’refuat haguf yachad im kol cholei amo Yisrael. Barukh atah Hashem, rofeh ha’cholim.

May the One who was a source of blessing for our ancestors, bring blessings of healing upon (Miss M's son), a healing of body and a healing of spirit. May those in whose care they are entrusted be gifted with wisdom and skill, and those who surround them be gifted with love and trust, openness and support in their care. And may they be healed along with all those who are in need. Blessed are You, Source of healing.

A Prayer
Mi sheberakh avoteinu mekor habrakha l’imoteinu
May the Source of strength
Who blessed the ones before us
Help us find the courage
To make our lives a blessing,
And let us say: Amen.
Mi sheberakh imoteinu mekor habrakha l’avoteinu
Bless those in need of healing With refuah shleima:
The renewal of body,
The renewal of spirit,
And let us say: Amen

My prayers are with you Miss M, your son, and your family.....

Prayers going up!

All Blessings,
Jerry

My thoughts and prayers are with you. TT

Prayers going up for you today. Fred H is one of the best places in the world, so I am very hopeful.

The doctor's there are among the very best. My prayers for your son and your family.

Ditto, queenie.

We sing this at our services.

Prayers going up from So. Cal.

thank you so much everyone!

okay, I'm done now. For a minute. (crying that is)

His name is Nigel.

Your prayers mean more than you could ever know, to me.

I believe he will get through this.

We are waiting for a pet scan to be scheduled and away we go.

This has hit us really hard.

We (the family) will have to come to a 'come to Jesus' meeting soon, and figure out how we will help him through this. It will be hard, but I have faith.

I am humbled by your support.

Please, please, pray every day.

Thank you all so much for your support. This is AWESOME!!

Love in Christ,
Miss M

Miss M-


Thanks for sharing his first name. I'll let my mom and the other "older" prayer warriors at her church know to pray for Nigel at Fred Hutch.

Queenie,

Thank you so much.

Your prayer could not be more perfect for us at this time.

The Lord bless you and keep you.

Love in Christ,
Miss M

Miss M,

May the lord bless you, Nigel and the rest of your family and keep you.

B'Shalom

Update:

Insurance won't pay for chemo and radiation at Fred Hutch.

So . . . please pray that we get a good chemotherapist here in Walla Walla. Haven't been too impressed with what they have done so far.

Thanks all.

Love in Christ,
Miss M

Any way you can make a trip out of country to get it?

No,

We are in the U.S.

Now the insurance won't pay for his pet scan.

I don't know.

He's very upset. About the last thing he needs is to be stressed out right now.

They just don't have the experience or knowledge where we are at to deal with this rare form of cancer.

We have to fight this somehow. I am out of ideas for now.

He got the best possible insurance his company had to offer.

Gotta hate Group Health. Hope I don't get censored for this.

Love in Christ,
Miss M

Hi Miss M-

What about Providence, Swedish or University Medical Center? With the Group Health Hospital up near "Pill Hill" in Seattle, they may refer to those other places. They may also work with the Cancer Care Alliance on East Lake in Seattle.

The PET Scan may have been done with a referral and sometimes the business office gets quick to deny things because the referral didn't cross their desk before it was done. Contact them and make a stink. Then, ask who you can talk to who is higher up. Then, contact the State Insurance Commissioner.

He is with the Cancer Care Alliance on Eastlake. The insurance refused his chemo, radiation and now pet scan there.

It's part of Fred Hutchinson.

We don't live in Seattle. We live in Walla Walla.

The insurance is just wanting to get out on the cheap. They are looking for someone to take care of the chemo here. There is one doctor here they know.

I don't know why they refused the pet scan.

We will raise a stink.

I might just go to the State Insurance Commissioner immediately if they don't approve this.

Thanks for the info. Everything helps. We have never dealt with this.

It just seem unconscionable.

If he didn't have insurance he could go on disability and it would all be paid for. This is disgusting.

Love in Christ,
Miss M

Your son and your family have been in my prayers, Miss M. I see that you live in Walla Walla. We don't know each other and I absolutely respect if you wish to keep it that way. But I live in the Seattle area and in fact am a neighbor with someone who works in a lab at Fred Hutch. If I can do anything to make your stay more comfortable in anyway... I can't help with the insurance (I'm in a battle myself with an IC stay for our DD5 last summer), but if I can bring you books or food or help with your laundry or make banana bread... Anything at all to make your stay or your son's stay better to any degree, please let me know.

You can ask the mods for my email address. This post is my permission to them to pass it along to you.

God bless you.

Miss M, before the forums went down I wanted to send positive thoughts your way and tell you that you and your son are not alone.

We found out 2/27/09 that my step-son has a tumor named glioblasoma. The tumor is located in the center of his brain. He starts chemo and radiation on Monday. He is 30 years-old and married for almost 6 years.

I've seen several stories on Good Morning America when people have emailed them about insurance not following through. GMA has gotten answers and results. I probably sound like I'm out there but it may be worth a try.

Thinking of you and yours!

If you care to, contact me by email, and I will check into how to fight this. I'm sure he CAN get his treatment and this is just a glitch. I know it is frightening and annoying though.

thanks everyone!

Just wanted to respond quickly, have had finals all week and a 10 hour work day today.

Looks like the insurance will pay for the pet scan, SCCA has to appeal it, and it will go thru.

He has to do chemo here in Walla Walla, also radiation. Surgery is in Seattle. Insurance won't pay to have this done in Seattle.

He goes for first chemo on the 24th of March.

I will be in touch soon. I might need those e-mails from you for help in the future.

Thanks so much!!!!

Love in Christ,
Miss M

Praying for you and your son....

Hi Miss M-

I'm glad that the PET scan was covered. I had my chemo in a small town (Skagit Valley area) and it was nice to be in a smaller facility. All the Thursday "regulars" and the wonderful nurses became a caring family of fellow travelers and support people. Chemo can be tough but the other chemo patients and the nurses can give you and him lots of helpful advice.

I'll be praying for him during this time.

BTW-I asked my mom and the rest of the grandma prayer warriors at her church to pray for him too.

So glad to hear from you. I know way too much about cancer since my dad and mom both had it.

I've read millions of internet articles about how to get things done. Happy that your son is getting the treatment he needs.

Hi, Miss M.

It's been about a month. How are things going for you son? And how are you doing?

Thanks for asking!

He went into the hospital for his first chemo on Monday. He will be there 6 days and then home until May 11, when he has another 6 day session in hospital.

After that, probably a couple of weeks, he will go up to Seattle for surgery, will be in the hospital at least 5 days for that, and then they will figure out if he needs radiation or not.

He has a good attitude, and I am trying to be cheerful. We are going to go through the hard times right now, as he will be really sick from the chemo.

Unfortunately, I have had a bit of a bug/fever, and have been unable to visit him. So we are trying to get people to come see him cause he needs company.

The cool thing is that his room is right across the street from a beautiful church with a gorgeous cross above a very steep steeple. My son said he has the perfect view. LOL. It makes me happy, because everytime he looks out that window, he knows that the Lord is holding him in His arms.

The bad thing is there are some very, very ill people on that same floor. That is scary.

Please all, hold him in your prayers, that he will recover from this. I will update when I can. This time is crucial for him. Pray that the chemo will kill that tumor!!!!!! I told my son to just visualize that chemo finding the path to his tumor and killing it.

I am so overwhelmed with everything and I have soooo much to do that it is making me crazy. Hope to get everything caught up in the next month.

My house has to be sparkling when he gets home from the hospital as his immune system will be compromised.

Believer I need you to help me get my house clean!!!! LOL!!!

Love in Christ,
Miss M

I absolutely respect if you want to keep this matter to among family members and if you wish to keep your identity anonymous, Miss M. My offer still stands when you're in Seattle if you need any help of any kind, that you're welcome to ask me. If your son wants a library book or you need laundry done... If I can help ease the load when you're in town, please let me know.

God bless.