|
Joined: Apr 2001
Posts: 92,985 Likes: 1
Member
|
Member
Joined: Apr 2001
Posts: 92,985 Likes: 1 |
This thread is making me cry with relief every time something is added. I have had "Aunt Flo" every two weeks for the past year, and I am sick of it. I can't wait to call this endo.
Maybe I won't be a warbling, fat, straw-headed lump forever after all! 4 lurioosi, I am reading up on this and according to this thyroid doctor, the best way to tell if you are hypo is to take your temp first thing in the morning and if it is under 98.6 then you are probably hypo, and depending on how low it is, the worse it is. I had my H take his this morning and his was 96.6. He has all the signs of EXTREME hypothyroidism so I convnced him to go to an endo. I made an appt to see one myself on Thursday. i will let you know how it turns out.
"It is not the critic who counts; not the man who points out how the strong man stumbles, or where the doer of deeds could have done them better. The credit belongs to the man who is actually in the arena.." Theodore Roosevelt Exposure 101
|
|
|
|
Joined: Jan 2009
Posts: 1,535
Member
|
OP
Member
Joined: Jan 2009
Posts: 1,535 |
THis is what I don't get. My temp first thing is normal. I am frozen all day, have my windproof fleece on at work, when everyone else has shirt sleeves. Then when playing out on the field (because it's warm) I have my puffa Jacket on and several other layers, when everyone else is in shirt sleeves and sweater.
And obvioulsy my TSH levels suggest otherwise. But it just doesn't add up.
I wondered whether it could be because I go to bed in fleecey PJs and have a 13.5tog duvet????
Anyone here have any ideas?
But then J took his temp this morning his was 96.6 too Mel and quite often hypothyroidism is mis-diagnosed as bipolar - so maybe he isn't mildly bipolar.
|
|
|
|
Joined: Jan 2009
Posts: 1,535
Member
|
OP
Member
Joined: Jan 2009
Posts: 1,535 |
Just found this: Scorecard J fits much better with the adrenal prob column. How do you guys score? Are your symptoms definitely all hypo or do you have mixed or adrenal fatigue symptoms? Would hardly be a surprise if a lot of us here had adrenal fatigue symptoms.
|
|
|
|
Joined: Oct 2009
Posts: 2,416
Member
|
Member
Joined: Oct 2009
Posts: 2,416 |
I can't get the scorecard link to work. I'll try again later.
|
|
|
|
Joined: Jan 2009
Posts: 1,535
Member
|
OP
Member
Joined: Jan 2009
Posts: 1,535 |
I can't post a link that works a little way back then click the link to the metabolic scorecard (which doesn't work. then on the Dr Rind page, click to return home On this home page go to "Thyroid Scale" which is interesting in itself. then in the first paragraph on that page is the link to the scorecard
|
|
|
|
Joined: Oct 2009
Posts: 2,803
Member
|
Member
Joined: Oct 2009
Posts: 2,803 |
Are memory problems a symptom of thyroid issues?
I just received a rejection for one of my stories from a magazine I have absolutely no memory of submitting it to. I checked my online submission tracker, and sure enough, I sent them the story in January. I literally do not have any recollection of ever doing this.
I am way too young to be losing my mind.
Me: BS/FWW: 48 BS/WH: 50 DS: 30, 27, 25 DD: 28 OC: 10 BH and I are raising my OC together.
|
|
|
|
Joined: Jan 2009
Posts: 1,535
Member
|
OP
Member
Joined: Jan 2009
Posts: 1,535 |
|
|
|
|
Joined: Aug 2006
Posts: 3,490
Member
|
Member
Joined: Aug 2006
Posts: 3,490 |
For anyone who thinks they may have thyroid problems OR are on Synthroid/Levoxyl/Cytomel and still are not feeling good, this website has been a godsend for me: StopTheThyroidMadness I am a hormonal mess due to hypopituitarism from a tumor on my pituitary gland...I have had to learn waaaaay more about this stuff than I ever wanted to. I have files 5 inches thick from all of my information gathering and website bookmarked like you can't believe. I hope some of it helps others...medical problems and getting them fixed are the pits.
Me,BW - 42; FWH-46 4 kids D-Day #s1 and 2~May 2006 D-Day #3~Feb.27, 2007 (we'd been in a FR) Plan B~ March 3 ~ April 6, 2007 In Recovery and things are improving every day. MB rocks.
|
|
|
|
Joined: Nov 2008
Posts: 3,772
Member
|
Member
Joined: Nov 2008
Posts: 3,772 |
Wow, interesting website. I have been on the generic synthroid and honestly feel it's not doing me any good. A lot of the symptoms I see here which I have been attributing to old age and maybe even undiagnosed Lyme, might in fact have to do with my thyroid.
|
|
|
|
Joined: Aug 2006
Posts: 3,490
Member
|
Member
Joined: Aug 2006
Posts: 3,490 |
Wow, interesting website. I have been on the generic synthroid and honestly feel it's not doing me any good. A lot of the symptoms I see here which I have been attributing to old age and maybe even undiagnosed Lyme, might in fact have to do with my thyroid. Right...lots of people feel this way, as you can see. You might considering asking for natural thyroid and if your doc won't prescribe it, maybe find another doc? I never knew how good I could feel until I got all of this straightened out...HUGE difference.
Me,BW - 42; FWH-46 4 kids D-Day #s1 and 2~May 2006 D-Day #3~Feb.27, 2007 (we'd been in a FR) Plan B~ March 3 ~ April 6, 2007 In Recovery and things are improving every day. MB rocks.
|
|
|
|
Joined: Apr 2001
Posts: 4,083
Member
|
Member
Joined: Apr 2001
Posts: 4,083 |
Unfortunately for me, natural thyroid has a sulfa component. The first treatment my NP tried was Westhroid. It worked, for a couple of months. Then things started sliding again. Blood work showed that T3 levels were back down and T4 was off as well. She tried a natural compound T3-T4, but that also has a sulfa component.
Eventually, the only treatment choices left were Cytomel for the T3 and Levothyroxin for T4.
I just had a check up today. T3 starting to slip - but not much. It's some of the other hormones that are slipping. We talked about having a hysterectomy just to get that part over with. We're trying a bio-identical progesterone first. As well as a couple of other therapies.
She's surprised by the lab results that I'm even able to work. No kidding!
Notice the time I'm posting this. I can't get to sleep.
Big problem for someone trying to get over these kinds of problems! Wide awake even after progesterone, Gaba Calm and Melatonin.
|
|
|
|
Joined: Oct 2009
Posts: 2,803
Member
|
Member
Joined: Oct 2009
Posts: 2,803 |
I called and made an appointment with my OB/GYN today, but they can't see me until July! Ugh! I don't really have a GP that I like, so not sure what I'm going to do. I need to go back to the GYN anyway to talk to them about my rectocele, cystocele, and prolapsed uterus and discuss whether or not it's time for me to start seriously considering corrective surgery. I was hoping to get everything taken care of at once, but the lack of sleep and energy and hair loss is really starting to get to me.
Getting older sucks.
Me: BS/FWW: 48 BS/WH: 50 DS: 30, 27, 25 DD: 28 OC: 10 BH and I are raising my OC together.
|
|
|
|
Joined: Nov 2008
Posts: 3,772
Member
|
Member
Joined: Nov 2008
Posts: 3,772 |
I'm researching a new endocrinologist and will ask my doc for a referral. I'm worried about the sulfa component that KA mentions though, because I have a bad reaction to sulfa drugs.
|
|
|
|
Joined: Apr 2001
Posts: 92,985 Likes: 1
Member
|
Member
Joined: Apr 2001
Posts: 92,985 Likes: 1 |
Big problem for someone trying to get over these kinds of problems! Wide awake even after progesterone, Gaba Calm and Melatonin. Same here! I have the worst time falling asleep.
"It is not the critic who counts; not the man who points out how the strong man stumbles, or where the doer of deeds could have done them better. The credit belongs to the man who is actually in the arena.." Theodore Roosevelt Exposure 101
|
|
|
|
Joined: Aug 2006
Posts: 3,490
Member
|
Member
Joined: Aug 2006
Posts: 3,490 |
Unfortunately for me, natural thyroid has a sulfa component. NT and WT are not dessicated pig thyroid, correct? Are you certain that dessicated pig thyroid has a sulfa component? I don't have an issue with sulfa so I don't know...you might google Erfa dessicated thyroid and see if it does. I know some people have even had good luck calling Erfa and asking questions. Just a thought. We're trying a bio-identical progesterone first. Please be careful with progesterone...it is known to cause weight gain and have other undesirable side effects. I go to a phenomenal endo in L.A. He is a researcher and "treats" patients "on the side"....he has found that progesterone really has no benefits AND it has a lot of bad side effects. He may have an article about it on his website: www.goodhormonehealth.comI'm on a message board where I know women who have actually flown in from across the country to be treated by him, he's THAT good. Notice the time I'm posting this. I can't get to sleep. I'm having a hard time sleeping right now and I just had my cortisol levels checked...they are soaring at night, and this is why I can't sleep. Adrenal problems are very common with thyroid issues...they are severely exacerbated by stress. You can go here www.zrtlabs.com and order a saliva cortisol test. Thyroid problems won't be fully resolved unless your adrenals are functiong properly. Many docs are not aware of this but I know it to be true because it's happened to me.
Me,BW - 42; FWH-46 4 kids D-Day #s1 and 2~May 2006 D-Day #3~Feb.27, 2007 (we'd been in a FR) Plan B~ March 3 ~ April 6, 2007 In Recovery and things are improving every day. MB rocks.
|
|
|
|
Joined: Apr 2001
Posts: 4,083
Member
|
Member
Joined: Apr 2001
Posts: 4,083 |
The blood work came back with evidence that I'm producing extreme amounts of estrogen. (perimenopause). My regular doc wanted to put me on YAZ or an IUD. Which would have made things worse, being that I already am over-producing estrogen. Excess Estrogen My NP who specializes in getting women through this in a more balanced way is checking thyroid and estrogen/progesterone levels and is prescribing progesterone to try to knock down the over-production of estrogen. She checked kidneys and adrenals as well, and there's some stress there, but her focus in balancing the system is focused on Thyroid and progesterone - along with a few other things as well like vitamin D, a B Complex shot once a week.
|
|
|
|
Joined: Aug 2006
Posts: 3,490
Member
|
Member
Joined: Aug 2006
Posts: 3,490 |
Since she's running these tests andyways I suggest you request your testosterone levels be tested as well.
Sometimes if all/many of your hormone levels are high/whacked out it could mean something is going on with your pituitary.
Me,BW - 42; FWH-46 4 kids D-Day #s1 and 2~May 2006 D-Day #3~Feb.27, 2007 (we'd been in a FR) Plan B~ March 3 ~ April 6, 2007 In Recovery and things are improving every day. MB rocks.
|
|
|
|
Joined: Apr 2001
Posts: 4,083
Member
|
Member
Joined: Apr 2001
Posts: 4,083 |
Testosterone is low. HGH is extremely low.
|
|
|
|
Joined: Nov 2008
Posts: 3,772
Member
|
Member
Joined: Nov 2008
Posts: 3,772 |
MF, does your endo know of anyone in the Boston area? I'm really looking to see someone who goes above and beyond! My endo is a nice guy, but most of his patients are elderly and diabetic. I thinking he's not really a thyroid specialist.
|
|
|
|
Joined: Aug 2006
Posts: 3,490
Member
|
Member
Joined: Aug 2006
Posts: 3,490 |
Testosterone is low. HGH is extremely low. Kayla, you have a pituitary problem and you need to get dynamic testing done. It could be anything from a tumor or cyst (they're almost always benign) to damage to your pit from a head injury, hemhoragging, etc. The only reason HGH is low is from pituitary problems... I have this so I know this firsthand.Find a good endo in your area and go see one. You might find one on this website: www.stopthethyroidmadness.com . These are endos people have had good luck with. My doctor has a lot of good info on hypopituitarism as well: www.goodhormonehealth.com, I believe he recommends some endos there. OH, check that out as well, if not the STTM link above lists doctors too.
Me,BW - 42; FWH-46 4 kids D-Day #s1 and 2~May 2006 D-Day #3~Feb.27, 2007 (we'd been in a FR) Plan B~ March 3 ~ April 6, 2007 In Recovery and things are improving every day. MB rocks.
|
|
|
Moderated by Ariel, BerlinMB, Denali, Fordude, IrishGreen, MBeliever, MBSync, McLovin, Mizar, PhoenixMB, Toujours
0 members (),
537
guests, and
73
robots. |
Key:
Admin,
Global Mod,
Mod
|
|
Forums67
Topics133,618
Posts2,323,473
Members71,916
|
Most Online3,185 Jan 27th, 2020
|
|
|
|