My doctor called this morning to let me know that he had my test results (have had abnormal paps for years, keep treating it) anyway he calls to tell me he had my results, and that they were the worst he has seen from me and that I need to come in for another procedure and to do a biopsy before "we" can decide where to go from here. I asked him if I should be worried and he said "lets wait for the rest of the results".....
I realize this may not make a lot of since, but my brain is not functioning very well right now.

KMEJ,

Your doctor is right...don't worry until you know what the results of your biopsy are.

The biopsy procedure itself is just mildly worse than a regular pap.

In my situation, it was not necessary to wait for the biopsy results before the doctor decided how to proceed. I had a massive tumor that required a hysterectomy, which still didn't get all the cancer so I was then treated with radiation therapy.

As is the case in a lot of the situations - early detection is key.

If it is cervical cancer, it is one of the easiest types to treat.

My sister had a situation similar to yours when she was pregnant (abnormal cells). Her doctor had to wait until after she delivered to do a biopsy. She ended up being fine. She had a procedure to remove the cells and she went normally and even had another child.

So try not to worry until you find out your results. You have enough to worry about right now without adding that to it, so just try to take care of yourself and your children.

If you have any more questions, feel free to ask me. I have a lot of experience with this, as a patient (keep in mind that I am not a doctor).

Take care,

Froz

KMEJ -

Sorry to see you having to deal with this. I know it is scary. But I would not worry if you have been getting regular checkups.

If it is cervical cancer, it may be only in-situ (on the site, or skin). If it is more invasive, it is readily treatable.

When you get more results, talk to your doctor about all of the treatment options.

thanks both of you. I have been getting check ups every 6 months now for 5 years. It goes away being froze and then I am good usually for six months and then it comes back. I had a feeling I would get results saying it was abnormal again, I was not expecting him to say it is the worse yet from me. He has me a little shell shocked. He had already discussed a historectomy with me a few years back, but I wanted another child, so he treated it and now I have DS2, I had been doing okay for the last two years, with only a little abnormalties, and now he tells this. I am not sure I am ready for a hystorectomy- I guess I should be since I know it is coming, runs in my family, (my mother and aunt) but I am just not sure I want to be done having the option to have kids.

Depending on the results, there are other treatments besides a hysterectomy. So don't get too upset right now. You need to remain calm, and go over the options with your doctor.

I know the thought of not being able to have more kids is troubling to you. On the other hand, it must be scary having to keep getting treated for this and worrying about it.

Glad you have been getting regular check ups. That was smart. Now try to relax. I'm sure everything will be just fine.

I am trying to relax. I should be grateful for the three wonderful children that god has blessed me with. I am. I do not even want any more children right now, I just do not want the option taken away you know.

I am trying to relax and not worry about it because what good will that do anyway. I called and told WH about it and he acted like it was no big deal and then told me he had to go when I really needed to talk to him about it. I am rather hurt by his brush off- however in his defense I guess he was walking into a meeting- but I think this is more important- but I am not thinking clearly.

I am definitely not an expert but I'll give you my 2 cents.

WW had the same thing happen about 8 years ago (can it be that long... sheesh I'm getting old). She went in for the biopsy and it was inconclusive (negative). She's had nothing since (as far as I know). So try to not worry until at least you've had the biopsy.

I freaked out when I heard the word "cancer". But after reading about it, your friends on here are right. If the biopsy does come back positive (which there is a good chance it won't) it's a very treatable cancer if detected early and because you've been so proactive about getting checked I suspect you'll be in a good position for treatment.

Chin up!

Miker

No advice, but HUGE kudos to you for keeping such close track of the situation. The fact that you and your doctor have been monitoring the situation so closely is wonderful and gives you the best possible chance of conquering this type of cancer.

Dobie

I have been keeping close tabs on it as it runs in my family. I have been biopsied before, and been froze and all other things. What has me weirded out is this is the doctor I have been going to now for 6 years who has been helping me with all of this, and he called me himself and told me it is the worst by far of all my other abnormals. I am grateful that he said I should not worry as of yet so I will try not too. I will do what ever it takes to live for my kids.

I have that brain numbing haze that we all know so well. My insides are shaking and I feel like throwing up. Man I hate stress. At least my children are being good!

KMEJ -

Maybe reading about it on the internet will help you. Please don't get all upset - yeah I know that is easy for me to say.

You may not even have invasive cancer, and if you do it is very curable. I think you are making yourself sick by thinking of all of the what ifs. It would have been nice if your husband could have been more supportive though. That would really bother me.

KMEJ,

My thoughts and prayers are with you. I understand how difficult this is for you and I know the feeling of numbness and fear. Two years ago, my radiologist found a 4cm lump in my right breast. He sounded extremely concerned and serious and I was sent to have surgery immediately. They removed the lump and then I had to wait two excruitiating weeks for the test results. The tumor was benign - Thank God!

Please try to relax a bit, take a walk, listen to music or play with your children. I would not suggest reading any materials online at this moment since they may scare and confuse you even more. Make a list of questions that you may have regarding the pap result, the biopsy and eventual treatment option and present the list to your doctor. Then go from there.

I know that during the time that I was diagnosed with the lump, I often misinterpreted information that I was given. Do you have a family member/friend that can accompany you to the appointment? This may be helpful. I brought my husband and it was definitely helpful and he was able to ask questions and get further information that I may have forgotten because of my foggy head.

Good luck to you! I'll be thinking of you...

you are smart to have pap smears every six months. There was a phase in my life when I had to do the same thing. Good news is that problem can be solved without having to have a hystoretomy. I'll share my experience with you.

I have had a cone shaped section of my cervic removed twice. Not cancer, but just one stage away the first time. I was able to have a baby without any problem after the first conization.

Started having abnormal pap smears about two years later. When every six months, until a had a couple of abnoral paps in a row. Did a biopsy, not cancer, but needed treatment. They froze it, but still abnormal. They did a procedure called LEEP where they removed a section of my cervic in the office.

The last time was about 18 years ago. No abnormal pap smears since then. I have talked with my doctor and the area that was supsectable to cervical cancer had been removed. So my chances of getting cervical cancer or any abnoral pap smears now are very low. I still get a yearly pap test, though.

so there is treatment out there short of a hystorectomy. Good luck to you. Let us know what happens.

I had this about 21 years ago. From about age 19 on, every pap smear was abnormal (had them every 6 months). I had "carcinoma in-situ" twice. After my first was born was the first carcinoma diagnosis and the did a colposcopy and told me to get my family over with (I wanted 1 more). When the 2nd one was about 6 months old, it came back as carcinoma in-situ again and they did a hysterectomy. Best thing that ever happened to me (no more monthly friend). I did keep my ovaries because I was only 28/29.

Sometimes I think that the only problem with the hysterectomy is my boys will be SO SURPRISED when they have to deal with a PMS woman. They never learned about it growing up. I was really a PMSsy woman - I didn't even like myself nor could I get along with myself many months. <img src="/ubbt/images/graemlins/smile.gif" alt="" />

Pregnancy changed the dysplasia/hyperplasia to cancer both times. Until pregnancy they had been dyplasia/hyperplasia for 5 or 6 years.

Not a problem as long as you keep an eye on it. Also, when I had the hysterectomy I was told they could do the colposcopy again if I wanted more kids.

MA

My WS caught HPV from a guy she was with before me; she had an abnormal pap - there were abnormal cells; but the treatment was easy and successful. She had something called "Cryotherapy" or something like that; she was scared but said it didn't really hurt - just felt a little bit of pressure.

They basically used liquid nitrogen to freeze the infected part of her cervix and that was that.

Dunno how her next pap will be because at this point it doesn't look like we're getting back together anytime soon, if ever.

Get a second opinion before you go through with a hysterectomy.

Contact:

Hers Foundation

For information on alternatives to hysterectomy..and to find out if that will be at be possible in your situation.

My personal experience:
I had Carcinoma In Situ Cervix (probably from the HPV virus) before I was married and pregnant. I had a conization and a D&C in the hospital. It came back after about 8 months as found with an abnormal pap. That doctor recommended a hysterectomy. The doctor said I may not be able to get pregnant anyway because of scar tissue.

I changed doctors. Then I had a colposcopy with cryocauterization. Meanwhile I got married, then got pregnant and had a baby. I had followup colposcopies every six months for a couple of years. It didn't return. I gave birth to two more children after that.

Since I am about double the age when I had those treatments , I would think and hope there's even better diagnostic and treatments available to you now.

I understand your concern...I know it is scary.