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Joined: Nov 2007
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I've got it, it sucks, here's what it is:

http://www.fpa-support.org/aboutfp/index.html

Note the part that says, "It is said to be the most excruciatingly painful human condition in the world."

If it didn't hurt so much, I'd laugh about it. It figures.

I know, I know...I had it coming. grin

Well, I've been lucky enough to experience some of the worst mental and physical pain known to man. Hooray!

I'm not looking for sympathy, I was just wondering if any of you have any experience with this condition.


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I know you said you're not looking for sympathy, but I'm truly sorry you are going through this agony.

When did you start showing symptoms of this? When were you diagnosed?

Can mental trauma trigger this?

I hope it doesn't offend you if I offer to pray for you. I can only imagine how upsetting it must be, on top of your other trials.

How is your wife reacting to this diagnosis?

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It hits you, then goes into "remission" for days, weeks, months, or even years. I had my first bout with it late last year...had an MRI of my head, went to a neurologist and everything. I took my meds and it vanished until 4 days ago. This time it's much worse.

As far as I know, it's not tied to any mental state...it's all about a vein or artery getting too close to one or more of the trigeminal nerves.

Praying does not offend me at all.

My wife is more worried about it than I am, I think.

It literally feels like someone is shoving a very long needle from the top of my head down through the tip of one of my teeth. crazy


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It sounds dreadful!

You will indeed be in my prayers.

What will they do in way of ongoing treatment? Is it expected to go away?

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i second that


Me: 32 BS DDay: 9/14/08
Slowly coming to the realization that I
am one of those who can't get past it.
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Originally Posted by keepitreal
It sounds dreadful!

You will indeed be in my prayers.

What will they do in way of ongoing treatment? Is it expected to go away?

Thank you.

They may up my dosage or switch my meds. The next step would be one of several different surgeries, most of which would leave me with a partially numb face.

It generally does not go away on its own, but it can vanish for long periods of time, then come back without warning.

In some, it never goes away. It's an unpredictable condition.

At least there are no long-term complications, other than pain.


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my heart goes out to you, what you read was right, it is the worst pain a human can endure
my mother has it and it is an absolutely horrific experience when it is acting up
i hope you are seeing a neurologist that is familiar with this condition, if you go to an ER for pain relief the chances are what they give you will not even touch you
it is not your typical pain that routine meds will alleviate, unless they know and have experience with this pain you will only get overmedicated on useless drugs and still feel the pain

gabapentin is one of the meds she takes for it, her last bout of it was 2 years ago and i can't remember what the other ones are, like i said a neurologist who knows this condition is your best bet

she eventually had a procedure that numbed the trigeminal nerve, it had to be repeated but this was common

there is also a surgery where they can sever the nerve, but this needs to be considered carefully as the risks are higher

take care


M'd 22 years
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D-Day 08/08 LTA


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Thanks for the response.

I'm currently taking carbamazepine, which is the most commonly prescribed medication for this condition.

It's interesting...having experienced the pain of betrayal and this pain, which is said to be the worst a human can endure, I'd say trigeminal neuralgia is a cakewalk compared to infidelity. Maybe that's just me.

It might make for an interesting topic, given my fairly unique perspective.


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wow that is interesting, i do know that with each bout that my mother has had...it got worse and lasted longer, she had 4 or 5 before her procedure

i would strongly suggest you look into that procedure, the waiting list is long and there are not many who are familiar with it and have the expertise to perform it, in my area anyway
it can only be done when it is in remission which is of no use when you are having an attack

be very careful with having dental work, you should have dentist who knows about this
a dental procedure like a root canal can trigger it, they (meaning the medical field) say it doesn't, but it can



M'd 22 years
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D-Day 08/08 LTA


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I am so sorry.


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